Epilepsy & My Child Toolkit
It is estimated that nearly 2.2 million Americans are currently diagnosed with epilepsy; 316,000 are children and
youth ages 14 and younger. Of the 150,000 new cases of epilepsy diagnosed each year, approximately 50,000 of these cases will be diagnosed in children and adolescents under the age of 18. About two-thirds of all children with epilepsy outgrow their seizures by the time they are teenagers. The goal of eliminating seizures while preventing side effects is achievable for most children and youth, but it requires an organized system of care to ensure uniformity in the provision of services and support. As a parent, you want to help your child maintain a healthy lifestyle and ensure he/she has regular medical visits.
We hope you find the Epilepsy & My Child Toolkit: A Resource for Parents with a Newly Diagnosed Child useful
as you take on the responsibility of managing your child’s epilepsy. The Toolkit is designed to be a resource guide and information referral source. It includes forms to help you organize medical and educational information, take notes, and facilitate communication between all parties involved in your child’s care. We advise you to take the Toolkit with you to medical appointments, emergency room visits, and other appointments related to your child’s epilepsy.