About Epilepsy Foundation of Kentuckiana

Established in 1993, the Epilepsy Foundation of Kentuckiana began as a grassroots organization dedicated to supporting individuals and families impacted by epilepsy. Today, the Epilepsy Foundation of Kentuckiana is a trusted leader and vital resource for the more than 174,000 children, adults, and veterans that will live with epilepsy throughout Kentucky and southern Indiana. Guided by our vision that no one faces epilepsy alone, we provide help, hope, support, education, advocacy, and life-changing resources to those navigating the challenges of this complex neurological condition.

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Did you know that epilepsy is one of the most common neurological disorders in the world? Yet, despite its prevalence, epilepsy remains widely misunderstood. Our mission is to improve the quality of life for those affected by epilepsy through education, advocacy, research, and connection. Every day, we work to ensure that individuals and families affected by epilepsy have access to the knowledge, support systems, and resources they need to thrive.

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Today, 1 in 26 Americans will be diagnosed with epilepsy during their lifetime, meaning nearly every family, workplace, school, or community will be touched by this condition. The Epilepsy Foundation of Kentuckiana is honored to provide critical education, advocacy, outreach, and direct support services that help people overcome the often-devastating effects of epilepsy, including sudden unexpected death in epilepsy (SUDEP), anxiety, depression, cognitive challenges, memory issues, and social isolation. Through our programs and services, we help improve quality of life and foster a sense of connection and belonging for those affected.

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With more than 40 different seizure types and epilepsy syndromes, epilepsy is far more complex than many people realize. Unfortunately, myths, misconceptions, and stigma continue to create barriers for those living with the condition. That is why education and awareness remain at the heart of everything we do.

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One of our proudest accomplishments was leading the effort to bring epilepsy education into Kentucky's public schools through the passage of the Lyndsey Crunk Act in 2018. This landmark legislation established seizure-safe practices in schools across the Commonwealth and became a model for states nationwide. We are equally proud that Indiana was among the early states to adopt similar seizure-safe school legislation. These important measures ensure that students with epilepsy have seizure action plans on file and access to FDA-approved rescue medications when prescribed, helping create safer learning environments and greater peace of mind for families.

Today, the Epilepsy Foundation of Kentuckiana continues to partner with schools, healthcare providers, employers, and community organizations to build a more informed and supportive community for those affected by epilepsy. Together, we are creating opportunities, breaking down barriers, and ensuring that individuals and families have the support they need at every stage of their journey.

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Your support makes this work possible. By investing in the Epilepsy Foundation of Kentuckiana, you are helping provide critical programs, advocacy efforts, educational resources, and compassionate support to thousands of individuals and families throughout Kentucky and southern Indiana. Thank you for partnering with us as we work toward a future where every person affected by epilepsy has the resources, understanding, and community they need, so no one faces epilepsy alone.